Matthew and daddys race car

Here is a picture of Matthew and his dads race car he loves to watch his dad race. He is also enjoying riding his pony (will get pics soon ). He had a fun weekend camping and fishing, camp fires, smores, playing, riding his bike and who knows all that we did. It was great!

A doctor who cares

Matthew got a new pediatrician today and he actually seemed to care about everything we talked about and seemed to be appalled by the way doctors here are treating him, to bad we still have to drive 200 miles (round trip)if something happens but atleast he listens and cares. So for once I am pleased with the out come of a doctor. He asked about concerns, questions everything he was great and an added plus he is very nice. Just wanted to post the good news. Hope all is well for all my friends and their loved ones. Be well and talk soon.

Doctors???

I am extremely irritated right now my son woke up and said he can't hear out of his left ear. So I call his ENT 3 hours ago and still haven't heard anything back. I am not a doctor but a 4 year old saying he can't hear and having pain in that ear is not freaking normal. You would think that someone would return my call even if it is a nurse especially with all his medical issues. I am so very frustrated right now I could scream. It is funny because he hasn't complained of any pain he says it hurts but he is not fussy or crabby. I'll tell you what though he sure talks louder lol.. but anyway just had to vent a little.

It never stops

Well as I said before he had croup and bronchitis and now we can't get rid of the bronchitis, it has been 2 weeks and he still has it. I feel so bad for him it seems to be one thing after another. We are doing breathing treatments every 4 hours and he has been on antibiotics for 2 weeks and will probably have to get the doctor to get him some more. Well anyway that's whats going on right now. Best to all.

Matthews 4

Matthew turned 4 on April 16th, they grow up to fast. He has croup right now so he isn't feeling the best. He finally weighs 30 lbs, still has the stints in his eyes and of course he still has his Mikey. One cool thing I haven't shared is last fall a guy gave him a pony of his own to love so he REALLY looks forward to seeing him everyday. We have noticed one side of his body growing slightly faster than the other and his face is getting more triangular, and for some odd reason he has been falling a lot. Well that's all for now. Here are a couple b-day pics.

Matthews Doctors

I wanted to let people know about the people that care for Matthew. He has some wonderful doctors in Iowa City. If it wasn't for these doctors I am not sure if my son would be with me today. The doctors in the town I live in well let me just say I think their degree came from a cracker jack box because they have NO bedside manor, wouldn't listen to a word I would say, thought that I was some over bearing mother who knew nothing. Then finally we were referred to The University of Iowa Children's hospital. We found the best doctors ever there and finally some one to listen to what I had to say. Not only were the doctors great the nurses everyone we ever came into contact with was great. I remember one time I rushed Matthew to Iowa City, Matthew had his tonsils removed he was in the hospital for 3 days still wasn't right but doctors said once he was home he would perk up, but 2 days later we were back he still wasn't eating so he was admitted to the hospital for another 4 days, we went home again, and 2 days later he had a fever of 103 so I rushed him to the ER and he was admitted again for another 3 days. The doctors said he should be recovered from the tonsillectomy that that wasn't why he was sick his pediatrician told me he was doing it for attention so he was again sent home still not doing well and not eating. We went home and the doctor that did his tonsillectomy had us come back 2 days after we went home just for a check up and he was still ill and not at all doing well. When I asked him if maybe his blood sugars could be low he said no we checked them 2 days ago and they were fine. We left his office, I called a nurse down in Iowa City I was in tears frantic that Matthew wasn't going to live if he didn't get help so she had me bring him down there, when I got to the ER in Iowa City he was started on an I.V immediately, they checked his blood sugar and it was 50 that's not OK like the other doctor said. Well we spent another 4 or 5 days in the hospital come to find out there was an infection sealed behind the scabs from his tonsillectomy, he had to do 5 days of I.V antibiotics, and he had some kind of white spots in his mouth and on his body, so he had to be treated for that. So I think when dealing with doctors if you are not happy with how you are being treated keep looking there is a doctor out there that is still a doctor not someone who is in it for the money I have about 6 doctors and nurses that are the best people ever and I know if I called them or e-mailed them they would do what ever they could to help my son and that means the world to me. Well just wanted to let everyone know there are still doctors out there that care for their patients. Keep the faith if you have one that isn't.

Matthew 2 weeks later

Well Matthew is finally better after surgery, and I have found a new friend to talk to thanks to our blog. It took Matthew almost 2 weeks to recover from his surgery, and the getting ill immediately after. But tomorrow we face a new challenge, I have to take Matthew to a Doctor for kidneys I am hoping it is nothing but if it is then we will deal with what ever it is.
I also wanted to ad to anyone who has a child with any growth disorders there is a foundation set up to help with several different disorders that children may have. It is called The MAGIC Foundation. They have information, names of other families you can talk too, and lots of other stuff. If you have not looked trust me it is worth the while to look at and it is not or RSS only there are many growth disorders they help families deal with. The website is www.magicfoundation.org
I also wanted to add a few more words about anyone looking, if you still do not have a diagnosis for your child never give up because with out you your child has nothing and you have to fight for them because unfortunately a lot of health care providers just don't seem to care and think you are crazy and just worrying too much and about nothing and if I would of given up on my Little guy I have been told he would not be with me today. So please never give up, if you think there is something wrong keep on it until you know for sure and you are certain there is nothing wrong. No one knows your child better than you, you need to be the voice for them. Keep fighting and know you are not alone in the fight there are others out there going threw the same thing.
To my new found friend I am praying for your little guy. Hope he is doing good.