Surgery Over

Well he is now recovering at home after a long 6 days in the hospital. Surgery went well had a few set backs with his internal organs not being where they were supposed to be, but they fixed that and continued on with the surgery. He has a long road ahead of him but he is a fighter so he will do great. He has very limited activity and his food has to be pureed on the other hand he has went through 3 gallons of icecream lol... Thanks to well wishers and keep following your heart it will lead you in the right direction.

Matthew goes in for major surgery on monday. I hope I am doing the right thing for my little boy. He is going to have a fundoplication or stomach wrap done so he will hopefully no longer have reflux which is causing damage to his esphagus. There are plus and neg. to this surgery and the most scary thing is if it works to well he wont be able to swallow anymore, a plus if it works no more reflux and 1 med. removed from his list.
Somedays I sit and wonder when is enough enough or is there such a thing when it comes to your child? I would go to the end of the world for him. I hope I have always made the right choice when it comes to him and his health care. I am so scared and nervous about the up coming surgery, will he wake up ok, will he get an infection, will it work, and will it work too good? My head is just spinning.

Flu

My little one has H1N1 I have him on fluids via his feeding tube and just keeping him comfortable. I feel so bad for him he looks and feels so miserable. Just when you think things are going good for him something like this happens. He is strong and will pull through this like he does everything else. Hope everyone elses kids are doing good and stay healthy.

Matthew goes to school.

I took Matthew in to meet his teacher today it was a very sad but exciting day. I am sad my baby is growing up and heading to school but excited for him to get out and meet some kids. He is in a special class for kids with needs. So he will only be going for 3 hours to start and see how that goes. He has since found out he will need glasses in his near future, not a big surprise since we have a strong family presence of people needing glasses. Will get some pics up soon of his first day of school. Until then happy thoughts.

Matthew and daddys race car

Here is a picture of Matthew and his dads race car he loves to watch his dad race. He is also enjoying riding his pony (will get pics soon ). He had a fun weekend camping and fishing, camp fires, smores, playing, riding his bike and who knows all that we did. It was great!

A doctor who cares

Matthew got a new pediatrician today and he actually seemed to care about everything we talked about and seemed to be appalled by the way doctors here are treating him, to bad we still have to drive 200 miles (round trip)if something happens but atleast he listens and cares. So for once I am pleased with the out come of a doctor. He asked about concerns, questions everything he was great and an added plus he is very nice. Just wanted to post the good news. Hope all is well for all my friends and their loved ones. Be well and talk soon.

Doctors???

I am extremely irritated right now my son woke up and said he can't hear out of his left ear. So I call his ENT 3 hours ago and still haven't heard anything back. I am not a doctor but a 4 year old saying he can't hear and having pain in that ear is not freaking normal. You would think that someone would return my call even if it is a nurse especially with all his medical issues. I am so very frustrated right now I could scream. It is funny because he hasn't complained of any pain he says it hurts but he is not fussy or crabby. I'll tell you what though he sure talks louder lol.. but anyway just had to vent a little.